Hello all
The rheumy department called a short time ago to let me know the results of xrays I had done last week. They will refer me to orthapedic (sorry 4 spelling) because my knee has been worn away.

Help?? Oh my gosh.
I'm just getting over my foot, returning to work end of the week.
(Still on stick) now I know why and can't moan about my puffy foot.

How worrying.

Please fill me with help (any).

Thank you
Jane (the pain)
Xxx

Thank you Jackie for your reply.
You are right, wait and see what the consultant says.
Just a shock.

I hope you are okay?
Do you get after care/physio?

Best I treat myself to some extra long (below the knee, excuse the pun) nighties from marks and spencers.

I shall keep you all posted (your all my tonic)!
Take care
Jane
Xxx

Hi Jane had my left knee replaced 3 years ago and I am made up with it , right knee needs doing but my hand knuckles are worse , so am going to talk to both surgeons and go with what they think should be done first . I won't lie is a major operation but if you can't walk far and are in permanent pain then get it done .

Sophie x

Hi all, interesting reading all these comments as I am on a list to see the knee consultant too Jane.
It does make tummy flip just thinking about it, but some very possitive comments here of support. Its definately not what you needed to hear when you have only just got over your other op. though Jane!
Good luck when you return to work, hope you get lots of support there.
Zena x.

thank you everyone for your experiences.
I remember the rheumy nurse saying the xrays show bone on bone and badly worn away.
This year has been bad to walk, I thought it was just the bunions!! Now and then pain in knee (which I thought was because of my feet).
This flare up seems like the knee wants to say me me me, I'm next to annoy you!

I would rather read other people's stories than google something.

Zena - thankyou! Back to work this weekend, have to try my best to stay awake! Got into the habbit of a nap in the day is wonderful. Dreading going back in an open plan office with my stick!
I have emailed occupational health unit at work to keep them in the picture, and cover myself over getting up for walk/stretch legs. Said I can't wear tights with my uniform because I can't bend my knees.
Going back in my crocs as well - they are like what nurses wear without holes on top and in black.

Do keep posting knee info.

Jane
Xxx

Sorry Jane to barge in on your thread, but one thing that I have wondered about is, do you still get ra type inflamation in a replaced joint?

It may seem a silly question, but if a joint is removed does that then mean that the fluid lining in the joint,( synovil fluid or something,)that is said to cause the inflamation in ra is totally gone and therefore the inflamation can not come back in that joint?

Just wondering, Zena x

Hi

The first operation on the knee I had was a synovectomy and debridement
They take all the swollen bag with thickened fluid and nastily annoyed stuff out
Then they noticed all the inside bits looked chewed.
I had an MRI a few months later
But the results explained I needed a TKR

Thanks Rebecca, my right Knee is suffering and it won't straighten. Trouble is the feet and hip and shoulders and elbows plus spine things need a look at.... That's the thing, one relates to another.
I start with having orthotics in my shoes next wk to help hold my feet better
My knee that's been totally replaced on the left is a corker. It still clunks a bit but i can stand one legged (leaning on my frame) but can stand one legged on it. I can't do that on the unoperated knee at all.
It's straight, I can now lift it off the bed without the leg lifter strap.
The only concern is that in the joint, it's warm. It's been that way since the op. it's not painful or red or infected its just warm inside. I wondered if it was because I can't feel much still I'm the side of the knee post surgery if it's so,e sort of neuro heat?. I'm going to ask my surgeon when I see him later in the year.
Tbh the surgeon didn't dare hope the outcome would be so good.
Having so many have post surgical infections etc.
But they had got the pain relief sorted out (syringe driver) and they were much more clued up
The biggest stress was my carer mutiny at home- but in the end that sorted itself out.

Thanks Rebbecca, though not good. So it seems really its probably best not to have a knee replaced until absolutely necessary for patients with R.A.??
Zena x

Hi Liz

Good luck for your surgery in a few weeks.

At least with technology we can all be more mobile in our own ways.

So sorry for being nosey Liz, what roughly does your op involve?

I find it all a learning curve to understand the process of what happens.

Jane
Xxx

hello everyone.
Re-reading things on here to see other peoples experiences and take on things.
Got busy week next week, surgeon Tuesday and rheumy the next day.
Not had good week, pain in knee & other places. Worried about the surgeon's take on his vision for my knee...
So scared..seems silly I know.

Blood results
The past two months the doctors surgery has printed off the results for me to take to rheumy because blood goes to one primary care trust, and rheumy comes under another pct and they don't link up for results on their nhs.
Sat down earlier with last months and this months - blood results are all raised more maybe leth meds not helping - rheumy said about biologics (been reading Paula's thread) its scary as well.

Chilling out to olympics opening ceremony music on ipod.
Wished I could have a guiness - can't drink on leth.
Have to eat little - leth made me unwell with ongoing runs.

Jane
Xxx